About Us
History
In 2022, after a 6-year medical odyssey, our son was finally diagnosed with Becker’s Muscular Dystrophy (BMD). While the diagnosis brought relief, it was quickly overshadowed by the reality that no treatment options were available. Fear, anxiety, and sleepless nights consumed us as we worried about the future of our beloved boy.
Everything changed when we met with doctors pioneering work in CRISPR technology and learned that a cure for muscular dystrophy was within reach. At that moment, our mission became clear: GET THIS DONE NOW.
In 2023, we founded Strongest Hearts, organized CRISPR research with Hunterian, and are rapidly advancing toward pre-clinical therapeutic development.
Muscular dystrophy doesn’t stop—and neither will we. We are fully committed to ending this disease and building a brighter future for our son and countless others.
Our Founders' Story
In 2022, Ryan and Tania Barbera founded Strongest Hearts after their only son was diagnosed with Becker’s Muscular Dystrophy. Driven by this life-changing experience, they committed themselves to a mission of finding a cure for muscular dystrophy.
Strongest Hearts is not only focused on advancing research but also on providing education to families and the medical community. By improving early identification and offering support, the foundation aims to bring hope and help to those affected by the rarest and most severe forms of muscular dystrophy.
Together, they are turning their family’s journey into a powerful force for change.
The Founders
Ryan Barbera is the CEO of Data Canopy, a global technology firm serving clients in healthcare, government, commercial real estate, and more. A recognized thought leader in the IT industry, Ryan served on the advisory board of the Howard Tech Council.
Ryan is the majority owner of the Baltimore Celtic Soccer Club, where he combines his passion for soccer with his dedication to mentoring young athletes.
In his free time, Ryan enjoys spending time with his family, as well as playing and watching soccer. His dedication to both his professional work and community involvement exemplifies his passion for making a meaningful impact in all areas of life.
Tania Barbera is an award-winning educator with nearly two decades of experience working with children. She holds a master’s degree in education from Johns Hopkins University and has spent 13 years of her career working with children with special needs.
In addition to her work in education, Tania is also a professional photographer, having honed her craft in some of the most prestigious studios in the Washington, DC, area.
Tania’s passion for advocating for children now drives her work with the Strongest Hearts Foundation, where she is dedicated to helping eradicate muscular dystrophy and making a lasting impact on the lives of children and families affected by the disease.
John brings over 40 years of experience in operations, human resources, and finance to Strongest Hearts. A lifelong advocate for helping others, he is deeply committed to our mission and dedicated to playing a role in ending muscular dystrophy once and for all.
